Resources for People with Pain
This is a growing section that includes practical tools, information and resources relevant to the advancement of comprehensive integrative pain management. The lens for what is included in this list is to consider what will be helpful to people with pain, healthcare providers, payers, purchasers, researchers, government agencies, non-government agencies, etc. who are all interested in advancing access to patient-centered, evidence-based pain management.
Please send your suggestions for additional resources to be added to this repository of resources to firstname.lastname@example.org.
Track frequency, duration, symptom, treatments, weather, triggers and more.
Easy to use massage guide
A complete pain diary
By retraining the brain to process pain differently, we can reduce symptoms and gain more control.
The world’s most advanced symptom tracker
Headspace is your guide to mindfulness for your everyday life.
A digital solution that helps patients, doctors, & case managers measure, monitor, and manage pain
MY PAIN DIARY is an award winning app which makes it easy to track your pain & symptoms and report to your doctors.
MyFibroTeam is the social network for those living with fibromyalgia.
Let’s make pain management better for everyone through education, condition tracking, and personalized reports
Sleep Cycle tracks and analyzes your sleep, waking you up at the most perfect time, feeling rested.
Equipping young people with the integral skills they need to thrive in life
Track & Share Apps have been consistently awarded “best health tracker app” acclaim, providing extreme customization and powerful graphing options that enable users to explore their health data using graphical analyses in simple ways.
Check your symptoms, access drug & treatment information and more 24/7 from the most trusted brand in health information.
YOGAmazing is a healthy living lifestyle Channel that offers a weekly 20 minute yoga routine that will bring balance to your body, mind and soul.
by Judy Forman
Published in partnership with the International Association for the Study of Pain, A Nation in Pain offers a sweeping, deeply researched account of the chronic pain crisis, from neurobiology to public policy, and presents practical solutions that are within our grasp today.
by Mara Buchbinder
Although pain is a universal human experience, many view the pain of others as private, resistant to language, and, therefore, essentially unknowable. And, yet, despite the obvious limits to comprehending another make sense of puzzling symptoms and work to alleviate pain.
by Rick Hanson
Per the author’s website, this book joins modern science with ancient teachings to show you how to have greater emotional balance in turbulent times, as well as healthier relationships, more effective actions, and greater peace of mind.
by Yvonne M. D’Arcy
This clinically oriented book provides nurses and physicians with quick access to much-needed pain management guidelines.
by David S. Butler
Aims to give clinicians and people in pain the power to challenge pain and to consider new models for viewing what happens during pain.
by Toni Bernhard
Per the author’s website, this book is about living skillfully with the challenges of any chronic illness or condition.
Leaves Falling Gently: Living Fully with Serious & Life-Limiting Illness Through Mindfulness, Compassion & Connectedness
by Susan Bauer-Wu, PhD, RN
A life-limiting illness may have taken hold of your body, but you can still live more fully and openly than ever before. You can enrich your life by exploring ways to make peace with yourself and deepen connections with friends and family. This book will help you reap the benefits of mindfulness and acceptance, one day at a time.
by Margaret A. Caudell, MD, PhD, MPH
This hands-on guide provides detailed information plus step-by-step techniques, activities and worksheets.
by Kathleen A. Sluka
Comprehensive in scope and invaluable for both practicioners and students
by David Nagel
Needless Suffering offers a sociological examination of a complex medical problem: chronic pain and the inability of doctors and other health professionals to understand and manage it in their patients. People in pain, writes Dr. David Nagel, are the poor of the medical world. Like the poor, they are stigmatized and left at the mercy of powerful social actors who tend to work in their own self-interest, frequently at the expense of those they propose to serve.
by Lonnie Zeltzer, MD and Paul Zeltzer, MD
Offers a guide to take control of the pain – regardless of the cause(s) – and, ultimately, help your child to chilm out of pain and get back to a normal life.
by Georgia Huston
A young pain victim’s inspirational and informative conversations with a variety of pain sufferers and specialists. They share their experiences with pain, their coping strategies, and what works for them in getting through the day.
by Marni Jackson
A compulsively readable explorer’s journal of the hidden territory of pain, as profound and insightful as the work of Oliver Sacks and Sherwin Nuland.
by Peter Abaci, MD
Comprehensive approach to chronic pain, one rooted in cutting edge research and case studies
by Bessel van der Kolk, MD
Dr. Bessel van der Kolk, one of the world’s foremost experts on trauma, uses recent scientific advances to show how trauma literally reshapes both body and brain, compromising sufferers’ capacities for pleasure, engagement, self-control, and trust.
by James Fricton, DDS
Dr. James Fricton set out to write a book about the factors that tip the balance between health and illness, particularly chronic pain, and what actions can be taken to enhance energy and wellness in the seven realms of our lives-the mind, body, spirit, lifestyle, emotions, society, and environment. He ended up with a tale that is part self-help book, part thriller and part Italian romance.
The Migraine Miracle: A Sugar-Free, Gluten-Free, Ancestral Diet to Reduce Inflammation and Relieve Your Headaches for Good
by Josh Turknett, MD
A neurologist with a personal history of migraines offers readers a revolutionary dietary cure that worked for him and continues to work for his patients: a diet low in wheat, sugar, and processed foods, and high in organic, protein-rich animal products.
by Sarah Anne Shockley
The Pain Companion is a practical guidebook to chronic pain management and chronic pain relief based on the author’s 8 years of managing debilitating nerve pain.
by Lynn Webster, MD
Internationally recognized pain specialist Dr. Lynn Webster validates the debilitating nature of pain, offers practical answers, and helps you become a catalyst for changing the way pain is viewed in society.
The War on Pain: How Breakthroughs in the New Field of Pain Medicine are Turning the Tide Against Suffering
by Scott Fishman, MD and Lisa Berger
Dr. Fishman offers an insider’s view of how the secret language of pain is decoded and disarmed. After reading this book he hopes that you will be able to act as your own best advocate throughout the healthcare system.
by Naheed Ali, MD and Moshe Lewis, MD
Walks readers through the various types of pain, the causes and symptoms, as well as the methods of treatment currently available. From prescription medication to acupuncture and massage therapy, various approaches may work for some but not for others.
by Georgia Huston
This book chronicles the author’s journey out of hopelessness and helplessness because of chronic pain between the ages of 14 and 17.
Professor Lorimer Moseley explains how pain works and explains new approaches to help reduce your pain.
Elliot Krane talks about the complex mystery of chronic pain and reviews the facts we’re just learning about how it works and how to treat it.oaches to help reduce your pain.
This is a great, easy to follow video about chronic pain.
The Agency for Healthcare Research and Quality’s (AHRQ) mission is to produce evidence to make health care safer, higher quality, more accessible, equitable, and affordable, and to work within the U.S. Department of Health and Human Services and with other partners to make sure that the evidence is understood and used.
We are the organization empowering volunteers to influence change and impact the future of cancer. From gaining dramatic increases in funding for cancer research to ensuring all Americans have access to cancer care, our work is saving lives and leading to new innovative breakthroughs in how to fight this disease.
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals.
Our mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into advances for patients with migraine and other disabling diseases that cause severe head pain.
Talk to your doctor about ways to manage your pain that do not involve prescription opioids. Some of these options may actually work better and have fewer risks and side effects.
The Chronic Pain and Fatigue Research Center is a multidisciplinary center committed to improving the understanding and management of disorders distinguished by symptoms of chronic pain and fatigue.
Mounting scientific evidence demonstrates significant rates of overlap among a cluster of prevalent poorly understood pain disorders that solely or predominantly affect women. The goal of CPRAlliance is to put an end to the neglect, dismissal and discrimination faced by these patients suffering from chronic pain, thereby improving their quality of life and medical care.
This collection of resources is to help patients with chronic pain, their families and providers who care for them. These include tools to help patients and their families to understand, monitor and manage their pain, as well as guidance on the safe use, storage and disposal of opioid medicines. It also includes education for families in the potentially life-saving role of preventing, identifying and treating medication overdose.
The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions, proudly working to provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population: Giving HOPE to all those whose lives are affected by EDS and HSD.
FibroGuide offers information and insights on 10 different self-care topics, or Steps. The information presented within these Steps is based on key strategies, such as physical activity, education, and support, that have been shown to help people with fibromyalgia manage their symptoms.
Integrative Medicine for the Underserved is a collaborative, multidisciplinary group of people committed to affordable, accessible integrative health care for all. Through outreach, education, research, and advocacy, we support those dedicated to promoting health in underserved populations. Together we work to shift the current paradigm towards equity, wellness, prevention, patient empowerment, and self-care.
The Institute for Chronic Pain is an educational and public policy think tank whose mission is to make pain management more effective by changing the culture of how chronic pain is treated. We engage in research, development, and promotion of scientifically accurate information related to the field of chronic pain management. We do so by bringing together thought leaders from around the world to provide academic-quality information that is approachable to all stakeholders in the field.
IASP brings together scientists, clinicians, health-care providers, and policymakers to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide.
The International Pain Foundation (iPain) is devoted to advancing access and quality care in order to help people suffering from a variety of muscular skeletal, inflammatory, neurological, emotional, degenerative and often rare conditions that involve chronic pain through education, awareness, and access to care projects.
The International Pelvic Pain Society promotes education about interdisciplinary approaches to the evaluation and treatment of health conditions associated with chronic pelvic pain; supports individuals living with chronic pelvic pain by improving access to care and supporting physical and emotional well-being; and raises public awareness through education, outreach and engagement and improves the lives of patients worldwide.
This site provides information about Medicare coverage for pain management.
This virtual resource center provides healthcare professionals, patients and policy makers with current updates on policy and practice for patients living with more than two chronic conditions – and associated symptoms.
The mission of NCCIH is to define, through rigorous scientific investigation, the usefulness and safety of complementary and integrative health interventions and their roles in improving health and health care.
The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.
Our mission to to cure headache and to end its pain and suffering.
The objectives of the National Pain Strategy aim to decrease the prevalence of pain across its continuum from acute to high-impact chronic pain and its associated morbidity and disability across the lifespan. The intent is to reduce the burden of pain for individuals, their families, and society as a whole.
National Patient Advocate Foundation brings patient voices to health system delivery reform. We develop and drive initiatives promoting equitable access to affordable quality health care through policy action and public and private partnerships. Our primary objective is to prioritize the patient voice in health system delivery reform to achieve person-centered care.
Developed by a broad group of representatives and stakeholders, this report identifies gaps, inconsistencies, and updates and provides recommendations for best practices for managing acute and chronic pain.
This website is designed to help you gain a better understanding of your pain. The site contains information to enable you to develop skills and knowledge in the self management of your pain in partnership with your healthcare providers.
Educating and empowering those with pain to minimize drugs, injections and surgeries
Empowering you to manage pain – Clinically supported information, tips, support and personal stories to help you manage musculoskeletal pain.
Patient Mind Inc. provides education to improve dialogue during healthcare visits. The average face-time with a healthcare provider is less than eight minutes. These eight minutes are extremely important for the patient. When patients are educated prior to this interaction, they are more likely to understand and adhere to the prescribed treatment plan. The patient is also more prepared to discuss symptoms and their condition with confidence. This enables healthcare teams to get a better picture of the patient’s condition, which sets the groundwork for better treatment plans.
The goal of painACTION is to help people improve their self-management of their pain condition. Written with the help of health educators, pain experts, and people dealing with pain, this site is a resource to come back to repeatedly.
Patients Rising is a national nonprofit organization dedicated to providing support and education to people with chronic and life-threatening illnesses. We work with patients to advocate for access to the treatments, innovations and care they need.
The Pain Management Best Practices Inter-Agency Task Force Report emphasizes the importance of providing balanced, individualized, patient-centered pain management to ensure better clinical outcomes for pain that improve quality of life and functionality for patients.
Our mission is to provide support, education, and hope to all affected by the pain and disability of CRPS/RSD, while we drive research to develop better treatments and a cure.
The Arthritis Foundation helps you live your best life by creating a powerful network of support through shared experiences, empowering information and meaningful connections. Whether it’s online or in person, we are all working together to promote life-changing resources and research, to push for change and to create community connections that welcome, inform and uplift. This is what makes our community of millions thrive and why we are all Champions of Yes.
The Frida Center for Fibromyalgia is an integrative medical clinic founded by Dr. Ginevra Liptan based on her personal experience with this complex illness.
The Pain Community (TPC) is a non-profit organization that engages patients, caregivers, healthcare providers and researchers to improve access to effective pain management. Through comprehensive, integrative pain care, people can regain a life with pain at a higher level of wellness. TPC has educational and advocacy tools as well as houses research resources from respected experts in the field of pain.
The Pain Toolkit Workshops are for healthcare professionals and people who live with persistent pain.
MSU is instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered myositis organization to offer live, online, video patient support, education, and activity sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.
The mission of U.S. Pain Foundation is to empower, educate, connect, and advocate for people living with chronic conditions that cause pain. As a 501(c)(3) organization dedicated to serving those who live with pain conditions and their care providers, U.S. Pain Foundation helps individuals find resources and inspiration.
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